Posts Tagged ‘side effects

06
Jun
10

Oh yeah . . .

Did I leave off baldness?

I can’t believe I forgot baldness.

And dried-out mucous membranes.

And fingernails that look like something off Frankenstein’s monster.

Advertisements
06
Jun
10

Side Effects for your Delectation

I made up a quick off the tip of my fingers list of side effects that I’m currently suffering. This is to present to Dr. Medici when I ask him exactly what he means when he says chemo shouldn’t affect every day life. Again, this was just the list I came up with after 10 minutes thought:

Side-effects with Abraxane, Avastin, Neupogen, Neulasta

1. Muscle-and-joint pain (A, A)

a. Controlled using Oxycodone1/2 pill ~ 4 hours/day, Morphine Sulfate 1/2 – 1 pill ~ 4 hours/night. Replaces fatigue/inability to focus mentally with drug generated instead of chemo generated (or exacerbates it, possibly). Can’t drive.

2. Fatigue

a. Trying to get up and walk around the house periodically, carry weights, do some stretching
b. Mostly napping

3. Inability to focus mentally

a. Can’t drive
b. Can’t read, knit, quilt, bead

4. Peripheral Neuropathy, fingers, large toes, lips, tongue

a. Using L-Glutamine to control it, marginally successful
b. Can’t knit, quilt, bead, turn pages in books
c. Concerned about driving

5. Bone pain (N, N)

a. See 1a
6. Liver pain, occasional pains elsewhere in abdomen, that appear to be unrelated to intestinal pains

a. See 1a

7. Mouth sores

a. Can’t brush teeth using anything but finger and Biotene

8. Sense of taste corrupted – everything tastes like sh*#

9. Insomnia at night

a. Using Ativan, currently using 1 or 2 pills ~ 4 hours

10. Constipation

11. Rash on hands and now arms

a. Burns if water warmer that lukewarm
b. Feel scraped if I accidentally rub them against something
c. Otherwise, mostly just red and ugly

12. Runny nose

13. Bloody nose (Avastin)

14. Drooling at night when laying in bed

a. No problem if I sleep in recliner, otherwise causing skin problems on face.
b. Causes sore throat from breathing with my mouth open
c. Related to Periph. Neurop, mouth sores?

15. Nausea
a. Fairly mild
b. Controlled by Compazine

16. other

15
May
10

Rash Actions

A day or so after my last chemo treatment (May 4 or 5), I developed a rash on the back of both hands. This happened once before, I thought with the adriamyacin treatment, but since abraxane is essentially the same as the taxol, it probably was with the taxol.

Exactly the same as the previous time, it starts at the base of the thumb, and runs towards the wrist for up to an inch-and-a-half; follows the web of the thumb to the base of the ring finger, where it covers the knuckle; and spreads a little bit up the ring finger, a little towards the knuckle of the middle finger, and maybe even up the middle finger a little bit. It starts out bright red, with extremely shallow bumps that taper out as they get further away from the web towards the center of the back of the hand. It is not itchy, and only mildly painful topically; but it is extremely sensitive to water temperature, more than lukewarm being very painful.

This week it was clearing up after using Aveeno hand lotion regularly, and periodically soaking it in a paste made of Aveeno oatmeal bath soak.

Tuesday and Wednesday were beautiful days, sunny and warm, so I went out into the back yard and lay in my lounge chair in the spotty shade provided by the elm. It was a little cool in the shade, but you’re not supposed to have sustained sun exposure while on abraxane, so I snuggled under the quilt that Evelyn made for me (really, I’m going to post pictures, just having some minor logistic difficulties). I’m pretty sure that my hands were mostly under the quilt both days.

I noticed on Tuesday evening that my hands were swelling a little bit – I didn’t think too much of it, as minor fluid retention is one of the expected side-effects.

Wednesday morning, not only was my left hand quite swollen, but my ring finger was extremely swollen. Before going to my support group meeting, I showed Brian what was going on, and we decided the ring had to come off. We tried soap, lotion, oil, and icing to reduce the swelling, but that puppy was going nowhere. While I was at the meeting, he called our PCP to ask if they knew of any special techniques. When I returned home we tried her suggestion, which involves running a piece of string under the ring, then winding it around the finger. By pulling on the string as you try to pull the ring off, it should get the ring past the swollen spot. In my case, the finger was just too swollen, and although we could see some progress, it was incredibly painful.

At that point, I was getting seriously concerned about triggering lymphedema in the arm (swelling due to the lymph fluid not being able to get out of the arm – typically, when only the sentinel nodes for the breast have been removed (such as mine were), it’s not a high-risk concern, but the additional surgeries and the radiation increased my risk somewhat). I also started having a minor panic reaction at the feeling of claustrophobia of having something so tight on my finger.

So I made the painful decision that the ring needed to be cut off. We called a local jeweler who told us over the phone “Sure, we can do that”, but when we got there, fobbed us off with the excuse that their cutter was out for repair (actually, one person said it *needed* to be sent out for repair, another said it was, and we think they were both full of it). When I asked if they could help us find a jeweler who could cut it off they didn’t even bother to say “sorry” before they said “NO”. So we drove over to the mall and at the first store we found, they were very nice and concerned, and cut it off in less than a minute.

I asked to have it soldered together on a temporary basis, so that I can wear it on a chain – since the rash is a known side-effect of the abraxane, I don’t want to take any chances on having it re-sized and then discover that I have to have it cut off again.

The swelling is mostly gone now, although it took a couple days to show much result.

We pick up the ring tonight, and I’ll be very glad to have it back – until now, the only time I haven’t worn it since we were married was when I was having surgeries, and then it’s been on a chain around Brian’s neck.




Post archive

October 2017
S M T W T F S
« Oct    
1234567
891011121314
15161718192021
22232425262728
293031  

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 33 other followers