Archive for the 'Uncategorized' Category

09
Aug
10

Home again

Brian here.  Julie has been discharged from the hospital, and got home around noon.  She’s obviously doing much better, although she’s tired.  Her appetite has clearly improved.  The staff at the hospital took great care of her,  but she’s very glad to be home, petting the animals, and sleeping in her own bed.

Julie says she’ll be posting soon.  Stay tuned.

01
Aug
10

Silence of the blogs

Brian here, sitting in at the blogger’s desk for Julie, who’s away taking a nap.

Kind of hard times at the moment, though not in the way you might expect.  You may recall that Julie started on anti-depressants a few weeks back.  In general that seems to have been a great move.  Contrary to what you might be imagining, she doesn’t sit around all day with a big silly grin on her face pointing at mundane objects and giggling.  Really she just seems to have leveled out a bit emotionally, much more like her normal self.

The trouble is that she’s having some cogitative difficulties.  In speaking, she often has trouble finding the right word.  Her thoughts are sound, and she can handle complex discussions though she tires easily, but the words aren’t always right.

We’ve seen motor skill problems also.  She stumbles a little, and has problems screwing lids on bottles.

The surprising difficulty is in operating the computer.  It seems to be primarily a  visual or hand-eye coordination issue, but it means that simple tasks are suddenly very difficult.  She couldn’t bring up the calendar in Outlook recently, and I found she had the cursor on the wrong button.  Her typing is error prone, and passwords are a challenge.  This from a woman who’s spent hours and hours designing databases, helping build websites, and playing complex computer games.

As you can imagine, this is terribly frustrating to Julie.  It probably also explains her absence from the blog scene recently.

The oncologist’s staff picked up that Julie didn’t seem her usual self, and the triage nurse called me to discuss it.  We concluded that it was probably due to the anti-depressants (which Julie predicted they would say), but that the oncologist would want a brain MRI to rule out brain cancer (which Julie also predicted – I told you her thinking was sound).  The MRI was taken two days ago, and we’ll probably have results tomorrow or the next day.  We’ll post something when we know the results.

Julie continues to sleep a lot; so much so that I think even the cats are in awe of her.  She’ll typically sleep about 16 hours at night, be up a couple of hours in the afternoon and evening with a nap or two scattered around, and then back to bed.  I’ve been encouraging her to sleep if that’s what her body is telling her, but the need for it concerns me.

Her appetite is also way, way, down.  At first I wasn’t concerned, associating with the chemo and the nausea.  This has been going on for a while now, though, and I’m concerned about basic nutrition.  I picked up some of those nutrition drinks doctors recommend in these cases.  She doesn’t like them much, but promised me she’d drink them because she knows I’m worried about her.

So, early next week I’m going to talk with the oncologist’s staff about the MRI results, about the anti-depressants, and nutrition.  We’ll keep you posted.

For those of you who follow the blog, regularly, Julie added a new feature about a month ago.  You can now subscribe to the blog, and the new postings will land in your in-box automatically.  See the subscription box on the right hand panel under the calendar if you want to sign up.

And though we’ve said this many times before, we can’t thank you all enough for your support.  The notes and card, the e-mails, the comments on the blog, the books and gifts all mean so much to us.  A special shout-out to Sharon, our personal angel across the street, for getting Julie to and from appointments when I can’t, and to Sharon’s friend Jessica who hardly knows us but pitched in that one day when neither Sharon nor I could.  Wow!  You’re all just amazing, and Julie and I are so lucky to have you watching out and caring for us.

19
Jun
10

Lunch With the Ladies

Thursday, Monica and Linda and Heather came over to have lunch with me.

Monica hit the kitchen like a storm, preheating quiche, slicing bread, prepping something or other; I set the table, and we were ready to eat.

Sausauge quiche, fresh-from-the-garden-asparagus salad, several types of fruit, bread, and who knows what else – it was all delicious!

We spent most of the time talking about work past; changes that are going on there now, and just laughing and having fun.!

Thanks for the food, fun, pep talk, and hugs – I was in need of them all. I agree, we should do it again

19
Jun
10

Meeting with Dr. Medici

Well, the meeting went pretty much as I expected, although having been forewarned by my call to the triage nurse last week, Dr. Medici strode right in and took charge.

Basically, he agreed that the toxicity had reached a very high point and it was time to scale back – I think he was hoping I’d agree to a lesser dose, but I was having none of that.

Our agreed-on plan, then, is that I will call him each week to let him know how I’m feeling, and when I’m ready for my next chemo. At that point, we’ll decide on the drug and the dose, and see how it goes.

My goal, that I expressed to him is not to make sure I live as long as possible. It is to enjoy the amount of life I have left with Brian. If the quality of life is good, then maybe it’ll be a long time. If not, then it is what it is.

Right now I’ve got a minimum of 2 weeks before I have to decide, since Dr. M. is out of town through 4th of July.

19
Jun
10

Quotations Police Alert

Just so you know, I intentionally paraphrased the quotation in the last post.

19
Jun
10

Sadness

Little did we know as we turned back south at Salishan last Saturday, that my Aunt Pat lay in the hospital just a few miles north.

The drive itself was exhausting me, and I didn’t want to have an unnannounced visit that would end up being very short  because of the state I was in, so I decided that the next time we came I’d make sure it was when I was feeling better.

Sigh. All the plans of mice and men most surely do go awry.

Aunt Pat died Tuesday night. I’ll miss her.

24
May
10

Robin – In Search Of: The Cube

Here, for you to watch while I’m off at the chemo “spa day”, is a video starring Robin and Brian demonstrating how Robin searches for his treat-filled cube. Because it was shot in one take, it ends up being a fairly simple search. We really need about 5 cameras, clip-on mics, and some editing software to turn this into a professional-looking video, so please forgive the faults.

Robin searching for his cube




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